I scheduled the surgery at Penn on 2/16. My wife suffered a stroke to the left basal ganlia area of the brain in January 2000, confirmed by an enhanced MRI. attacked and a few months later had terminal cancer which took her life He will refer me to a colleague at the Infirmary, a gynaecological oncologist, a good man, and I will have a hysterectomy and chemotherapy to follow. It all started on the day after Mother's Day in 1997, it was a day that life as I knew it, changed completely. When you are faced with something that you cannot change, you have a choice! The following Monday I was admitted to the hospital and on Tuesday I had a 6 1/2 hour operation. I can barely walk but I have to get back into shape so I can play tennis again. One last plea, let’s get the word out there about ovarian cancer. He put his hand on my hand and in my semi-conscious state, I grabbed it with my other hand. We'd have to wait on the pathology report to know for sure. The scan was supposed to have done my abdomen only but instead it went up to my lungs and scanned them. My mom was diagnosed with Ovarian Cancer 3 1/2 years ago, she had a full hysterectomy and a very large cancer mass taken out, but after six rounds of chemotherapy her CA125 finally went down to normal. I have also just had my three monthly clinic appointment this week and was informed by my oncologist that my tumor markers were down to seven. I am getting ready for my second cycle of chemo, Taxol/Carbo. She battled the disease for approximately 19 months. This time Dr. Barnes had decided to use cisplatin IP and Taxol IV. I take 7 rounds of taxol/carbo. I had a very strong abdominal and back pain. I'm grateful to God for the skills of the surgeons and chemo nurses that took care of me and all my friends who prayed for me. I joined a support group and those ladies were my sisters. Her lungs became filled with fluid and she was solely dependent on oxygen. She said it was caught early. Last year I had a bit of a fright when I developed a lump in my abdomen - it turned out to be an incisional hernia. He won't do too much because he doesn't want to affect my quality of life. My story began about Jan. 2004. some noises like she was trying to communicate with me. It turned out I had chronic fatigue and fibromyalgia and a rare muscular dystrophy and that was why I was tired all the time. The doctor; as he walks right on by to another bed. I love him so much for that. she worked very hard and long so i felt good about it. My brother said she did not even know who he was- she was so out of it on drugs etc. Beware and read your body! The similarities in their lives are noticeable, but what most people do not realize is that these women share a bond that goes beyond any neighborhood, school group, or car pool. He stated that tiny tumors were seen in my abdominal wall, but that chemo would take care of those. (woman with 150~ + chemo/multiple surgeries TO woman with no recurrence) L: This disease may have taken my ovaries but has replaced them with a ‘set of balls’. This didn't alarm me as I'd had a fibroid before and figured I had one again. Ovarian cancer is hard to Four years ago, she also became a school employee as an office clerk at Bay Meadows. They told me I had a bladder infection and treated me. It is hard not being able to plan ahead. He nodded again. The test uses special antibodies (“immunostains”) that each binds to a particular protein in question; the immunostain will change the color of the tissue to show whether a protein is present. I realize not my chapter in life no one could ever take. To my surprise, Dr. Atkins came through the door with that look of disbelief he had the day before in the X-ray room. During the past year I have had trouble with incontinence, was diagnosed with diverticulitus (doubled over in pain for a couple of weeks), gained weight although I am and always have been a small eater (take meds for hypothyroidism), and couldn't touch my toes or put on socks due to abdominal swelling. My mom was my best friend, and I am so very thankful for the years the Lord allowed her to be in my life. Dragon Tales premiered on PBS in June 1999 and quickly became one of the top-rated preschool series on television. "I tell them 'No matter what the statistics say, somebody has to be in that small percentage, and why couldn't that be you?' As all of you know, I was in shock and thought nothing like this could ever happen to my mom. Mom was bedridden during the entire process and had to have a decatheter to use the bathroom. My loving sister Anna has been diagnosed with stage III possibly stage IV ovarian cancer last Wednesday. I would just like to tell you to listen carefully to what your body is telling you and don't take no for an answer. If I had had a vaginal delivery, they would have never seen the Ovarian Cancer growing inside of me. You did everything you were supposed to do. Karan's recovery seemed to go well over the next week as we returned home to Atlanta. We all, I am sure, are aware of the high mortality rate associated with Ovarian Cancer, and my mom has been told that she has a 50/50 chance of five year survival, but someone has to be in that 50% that kicks this, right?!? A disembodied voice tells me what to do, "Breathe in ... Breathe out..." This scan happens to me again a year later and this time it is through the hole into Cancer land. My Ca125 is 154 and I do no chemo at all and will not again. They need me to stay strong and fight, fight, fight. It was doing no good. I will never be afraid of cancer again. the hospital. This is an update to a previously posted story of my mother’s battle with OVCA. I went for a routine gyn visit 1/00 and the gyn felt a mass. I laid down on the couch and thought about how to tell my husband - I felt like all the air had been drained out of me. On December 13th of 2005 she had the surgery. My belly button and my pubic region where they cut hurt as well as the arm that my IV was in, but I was comfortable and I was warm. Well I think it was because the doctors at the hospital gave her two more years to live. Stopped chemotherapy and began radiation therapy for pain control. with a Gyno but since I haven't been to one in about 10 yrs. My energy level was gradually diminishing. You pick yourself up and dust yourself off.". The doctor told my mom that she would contact her on the following day to let her know what the results were. It showed 3 cysts, 2 lime size cysts on right side and a lemon size cyst on the left. You can read back now and make the appropriate substitutions; the new undiscovered river was the hospital emergency ward, the guide was the doctor/surgeon, the scouting was a CT scan, heading to the crest of the rapids was learning Marlene had two advanced malignant ovarian cancer tumors and a host of smaller cancerous nodules within the abdominal cavity, the Scalpel Run was a complete hysterectomy and the safe eddy is her temporary resting spot before starting intensive experimental chemotherapy sessions next week and lasting six months. Her cancer treatment varied tremendously depending on which hospital she attended and the type of treatments given at our local hospital were responsible for her final tumor recurrences and her depressed quality of life in her last years. In August 2001, I had an appointment w/my ob/gyn for my yearly checkup. All I worry about now is my weight, because I am heavy and have type II diabetes. After about an hour the anxiety attack stopped and I was able to threw up and calm down. Everything was gone!! All in all I am very happy with the results but I also know that they can change at anytime and I will have to continue to be monitored for the rest of my life, however long that my be. Char experienced most of the ovarian cancer warning signs however, since she had no family member history of anyone presenting with ovarian or breast cancer her GYN felt it was a pelvic infection and prescribed medication for that. 10 years ago I had something called a dermoid cyst, could it be that? Through it all my mother has a positive outlook on life and rarely spent days in bed. I was bleeding for 10 and 15 days at a time, with it stopping for maybe 3-5 days in between. We called and never got her so we sent a friend who found her unable to walk, focus her eyes or speak clearly all of this in a matter of 2 weeks. Heather was 13 and in the eighth grade at SWMS, and Jennifer was a 16-year-old junior at DPHS. But this is what we've been dealt for some reason. For the next 6 months I kept going back to the Dr with the same pain they did numerous CT scans different test any thing you can think of and found nothing. She has left precious memories for those who knew her. Mugas adored her little man. She had a CT scan in December showing possible spleen and stomach affected again. Since 1997, I have continued treatments. (Krayzie Bone) I hope I don't have to fight cancer again, because honestly it's really hard. Although the cancer had not spread to my uterus and fallopian tubes, an area of my pelvic sidewall where the tumor had touched it contained cancerous cells. You haven't done a biopsy! Believe it or not, you have something very valuable to teach with your story. A type of cancer arising from an epithelial cell. The next day I called all the womens' health centers in Oregon looking for an oncologist who specialized in gyn cancers. I could not understand why she was so faithful to her I felt unwell, like I was slowly being poisoned. While in bed I could only lay in certain positions. He would start with laproscopic surgery to see if Saturday, I sent him back with specific instructions to ask the pharmacist what was the strongest over the counter medicine for heartburn. It was a long night. The second opinion was that it was highly likely that she had ovarian cancer. Microscopic cancer cells were also found in two adhesions on her bowels and in the lining in her pelvic area. I was having regular endometrial biopsies and was diagnosed with endometrial hyperplasia. Right now she is physically ok but still she cannot work as she used to work 2/3 years back and has developed big cracks in both her feet. Fortunately, surgery alone was able to take care of the one tumor, sparing her the effects of chemotherapy and radiation. My friends and family really showed how much they love me by doing their best to care for me. And yet this ovarian cancer was considered to have been discovered in the early stages! This will be the first one since my chemo ended in December & my last appointment with oncologist in January. First I was gassy, then constipated. Thank you for "listening to me" Blessings to all. # For syntax checking, see: She was sent home after one chemo treatment and was doing good. I live in Ohio. Until we see the after-chemo scan of my abdominal area, we won't know if the leisons have gone (that would indicate they were cancerous), or they are still there (indicating they are either cysts, leisons, or cancer spots that haven't gone away)or if some have and some haven't and some have grown we won't know (for certain) what type of cancer I have had, if it is cancer at all. I underwent 4 carbo/taxol treatments, then had a complete hysterectomy removing everything I did not need to live. That we continue to cope and survive is phenomenal indeed. Then while in the hospital, a number of tests would be ran and I was going to be prepped to have an exploratory surgery of my abdomen. Mom was checked into the hospital a few days before her I am a light skinned black woman. No recurrence to date. for 3 years said that I had endo. Having a ct scan was weird and a little scary but I'm still not worried. Sometimes I'd meet another friend for a 2-mile walk in the evenings. They removed gallstones and the gall bladder. Upon my visit to the OBGYN doctor, I asked for his personal opinion. It was such a shock when her cancer returned in late November. That night she went back into the hospital; after many tests we She was grabbing things with her fingers, almost like she was sewing. I don't want to count on the literature that I have been reading. Dr. cancelled appt and made if for 06/28/2012. For some reason my body was able to keep the cancer at stage 1a, while making me balloon up to the point where I had stretchmarks that were begining to crack open. I am getting treatment immediately. I'm now out of treatment for three months to see if I'm lucky enough to be in remission. They opened me from my breast bone down so they could see if they could see anymore cancer. To each and everyone of you with ovarian cancer who is reading this....A GREAT BIG HUG, SISTER!!! A journey that I hope will end tomorrow. children parentless…. A tumor came out of her umbilicus for which the histopathology report says, "Section shows histological features of poorly differentiated large carcinoma involving skin and subcutaneous tissue metastatic carcinoma”. I've seen my son married and become grandma to his boy/girl twins; I've been able to help my Mom through the loss of my Dad; my daughter is nearing menopause! The time goes by so slowly. The chemo isn't working and people are starting to have that panicked look on their faces again. By the end of August, when I tried to include these pants for a trip, they lacked at least 4" The quality of life must be considered as a major decision point in cancer care. I did not get in to get my haircut before hand so there are strands of hair that just kind of fall out and it drives me nuts, so I sit and run my fingers thru it and even more comes out, but not enough to make a difference. She had her first round of chemo yesterday, with 5 more to go every 3 weeks. I was always tired, had constant heartburn and stomach cramps. The lady Doctor and each would always say he couldn't feel anything there. After her surgery she had been really skinny and she started chemo a month after. In fact, she had already spoken to him and set up the appointment for 3:00. I can remember being so upset that something was happening to me, also, and was afraid to tell my father. Their story: Cellquest. I am 37. At the age of 49 Mary Jane Carper was diagnosed with Stage III ovarian cancer. I thought these symptoms were all part of menopause. Following the surgery she had to wear a colostomy because of the damage caused to her colon. When she was 46 years old, a very tragic thing happened to her. I called my internist and insisted she do a CA125. A six-week bed rest followed as my journey back to a healthy recovery began. The symptoms are vague and common (bloating, fatigue etc.) It’s not all uphill and it’s not always easy to watch but she's surviving. came to believe we are all here for a reason and we all have lessons to I am having vague abdominal pains(dull aches mostly)bloating, and constipated.I also have been having bad headaches. A more useful analogy would be: You wake up in a strange place and you're told you *were* in a car crash. When I went to the ER they hospitalized me and told me that I had Salpingitis. She had had blood in her urine a couple of times prior to her diagnosis, and her pediatrician did urine cultures and diagnosed her as having a bladder infection. Ovarian cancer women suffer excruciating pain because health care workers are not available. After being treated for IBS, she found no relief in the medications and went for a second opinion. You only have one, yourself. The fluid around my lungs contained ovarian cancer cells and a Cat Scan revealed suspicious spots on my kidney and a lymph node in my chest. She had informed myself and my two brothers about this surgery that was planned for some time coming up soon, but that the doctor was sending her to an Oncologist for a check up. Mom's body was debulked of the tumor but it had wrapped itself around her colon and had spread along her colon to the degree that her entire colon had to be removed. I had second look surgery Oct. Disallow: /libraries/ She would have to wait two weeks before having a complete hysterectomy and almost another week to get the pathologist's report, which confirmed that she had Stage III ovarian cancer. I know I've kind of insisted and I don't want to crowd your schedule too much ." I am blessed in comparison with some other ovarian cancer patients who have suffered pain and other symptoms for years without a proper diagnosis. He sent me to gyn who I had seen at the end of June and had not detected anything, nor had she ordered ca125. People from around the world prayed for me. Time with a specialist is very limited, and time with a specialist who treats you like a sensible human being, with humour and patience, is a blessing rarely received. Once there, walking to the car, I tell her the verdict. We were preparing to go to our family reunion and my mom became very ill. She was vomiting and she had a bad case of diarrhea so she was taken to the doctor. Seven months later a new mass develops and was told it was cancer. At that point, she never had a bowel movement again. I have asked the family if there is such a fund for Brandon and Nicole and will post the answer here. Of course, that would not be enough time for a pain killer to work anyway! I challenge you to listen, as we have, so silently, for so long. This only happens to other people…not me. I wonder if this month of delay made any kind of difference. A little while later she was able to go home. the tests that can rule in or rule out cancer. ), Doc said I had twelve weeks to decide, so I took that time to get my strength back. My mom was 72 years old at the time. Returned to work after 10 weeks, after Total Ab. She has been able to work pretty much fulltime after a 6 week break after the surgery. I had a total of 25 treatments of radiation, 6 weeks after surgery, and have survived cancer free for almost 4 years now. She had a history of back trouble and thought that the pain she had was due to that. Indicators of Lynch Syndrome are: multiple cases of early colon cancer across a generation and/or colon cancer with female reproductive cancers. It turned out to be an intestinal blockage that I needed surgery for. Through my mom's passing I have learned to appreciate life and every moment it consists of. I went it to my doctor because I was having awful stomach cramps. My mom was diagnosed with ovarian cancer on September 17, 2007 after going to the hospital with severe abdominal pain. I could not do anything. When the year ended, she felt like she was on top of the world. I am not sure where to start except to say I have ovarian cancer and have had it for 5 years now. Bad things happen in emergency rooms. I was so uncomfortable and scared. I have not had a menstral cycle in several months. I had just chosen to see a new ob/gyn due to an insurance change. Another scan revealed an 18 cm ovarian mass. In September 2001 surgery I was diagnosed with stage IIIa clear cell ovarian cancer. Dr Lucks says, "I’m not sure, we will know more once a OBGYN surgeon is in there and can see what’s going on.” I have been going to this man for a very long time since I was young, and it was like a knife was stabbed in his heart to tell me these things. A test for an infection in the urine was negative. In mid-May, the severe pain and nausea returned. Her determination was an inspiration to all of us who were around her. I am back to work a few days a week. She said. Come see me in 3 more months... And being in the military (and that's all the "insurance" I have) that's what I did. All were provided. We find it difficult to see her so fatigued and in pain. I was holding her hand and comforting her while she died in the Hospice House. I really had no family support, I went through this alone. I thought my life was over. She has now tested for Genetics..it is genetic. I was given six treatment of Carboplatin/Taxol chemotherapy; therapy was administered three weeks apart. It was hard to believe that she was actually my mother. It's presently June, I pressed my mother to go see a new doctor. Two days later I had that--complete abdominal, pelvic, and transvaginal (also blood work). She was concerned and frustrated. Initially my mom had GI symptoms; heartburn and bloating, no appetite. Thanks for any info you may have. He told me I was not to go out shopping or even go home for that matter he wanted me to go straight to the ER. "But if they're free, you know they'll all be Midge wigs," she said. Praise God. But I am grateful for and encouraged by the women who are living-yes living with ovarian cancer and defying the odds. It wasn’t until my follow-up appointment to remove the surgical staples that he broke the news that my pathology report confirmed cancer. I do carry the brac1 gene so I will have a double mastectomy in two years to prevent breast cancer. I have read about Dicer and Doscha proteins and wonder if there is anyway to stimulate these to help fight disease. from the ovca diagnosis. The air was cool on my face but the sun warm on my back as I grabbed the handrail and allowed myself to look down some 400 feet to the bay waters below. Do not ignore aches and pains, bloating, unexplained weight gain, gas, inability to eat much at a time, going to the bathroom constantly, and low backaches. I have 9 grandchildren that need me, friends that need me and family that need me and I need them. These had not been removed 8 years before, when my surgeon then said, "What did you do with your other ovary? We need new Her heart rate went up to 203 and they had to put her to sleep and electrically paddle her heart to make her heart rate come down.She was rushed to the hospital last Saturday after having been in extreme pain for a week. She has such a strong desire to live. He then asked me if i would be willing to go to Epping Hospital. date, including a pelvic. During the last 4 months, my ca125 is rising, and I am beginning to feel different physically. I have had severe hot flashes/night sweats since menopause at age 46. 8:00am . Anyway, my cycle began and hemorraging began too. Chemo is almost done -- Taxol is my drug. I wish I had known as much as I do now before being diagnosed with Stage IIIb in Nov. 2000. My family doctor knew immediately and in the next 3 weeks I went through ultrasounds, CT scans, various bowel x-rays and then surgery -- complete abdominal hysterectomy, bilateral salpingo-oophorectomy and omentectomy. Her MRI's showed the ventricles overall were prominent and there was widening of the sulci consistent with cerebral atrophy (wasting away of brain cells and tissues). Two weeks passed at home and my doctor still had no answer or pathology report. My OB/GYN looked at my cervix under a microscope, and it looked normal. I was out of my mind with fear and if it weren't for my husband, friends and good medical care I would not have made it through. We were told, correctly, that this cancer would probably be unresponsive to chemotherapy. They had high hopes for her prognosis and I was thrilled to hear them say that. She had lots of fluid built up around her lungs. Last August I celebrated 7 years for survivorship. Four weeks later another pelvic sonogram that literally paled the young, new doctor...I must have surgery he tells me...would be best to have another doctor do this...I should seen a gyn/oncologist before proceeding. A large (3.5cm) solitary cerebellar brain tumor was found via enchanced Cat Scan (later confirmed by an enhanced MRI). After 2 surgeries, the hernia has returned and I have since learned that bowel obstructions quite often happen in conjunction with abdominal hernias. 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